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About Us
This website is a collaborative effort between patient advocacy organizations, patient experts, and healthcare professionals with the mission to share COVID-19 related resources and information for adolescent and young adult cancer patients, survivors and healthcare professionals who work with this unique population
Contributors
Advocacy Contributors
Mallory Casperson, CEO and Founder, Lacuna Loft
Simon Davies, Executive Director, Teen Cancer America
Karen DeMairo, MHSA, Vice President Education, Support and Integration, The Leukemia and Lymphoma Society
Hilary Gan, Hospital Programs and Services Director, Teen Cancer America
Madeline Meislin, MPA, Senior Manager of Programs, Cancer and Careers
Alison Silberman, CEO, Stupid Cancer Inc.,
Physician Contributors
Archie Bleyer, M.D. Oregon Health Sciences University
Craig Nichols, M.D. Director of Testicular Cancer Commons, SWOG Executive Officer
Stu Siegel, M.D. Former Director of the Children’s Center for Cancer and Blood Diseases at CHLA, Current Chair of the Board of CureSearch
Founding Organizations
Stupid Cancer's mission is to empower adolescents and young adults affected by cancer by ending isolation and building community. Through innovative programming and strategic communications, the organization aims to provide support, resources, education, and a sense of community both online and in-person. For more information, please visit www.stupicancer.org.
Teen Cancer America helps hospitals and healthcare professionals bridge the gap between pediatric and adult oncology care by supporting hospitals and outpatient facilities in the development of specialized units and programs for this age group. TCA brings together physicians and allied healthcare professionals in both pediatric and adult oncology. Age-targeted care for this population is necessary for medical and appropriate psychosocial development. Outcomes associated with some cancers that target this age group have not improved in over 30 years. Teens and young adults with cancer are long overdue for an upgrade and TCA can hopefully light the fire in America’s health systems. For more information, contact Michelle Aland michelle@teencanceramerica.org or visit www.teencanceramerica.org.
Lacuna Loft is a nonprofit organization that provides online support programs to young adult cancer patients, survivors, and caregivers. Regardless of diagnosis and regardless of where they live, Lacuna Loft's programs are fully accessible and specifically designed for young adults facing cancer, offering them the survivorship care they deserve through a medium that fits their lifestyle. For more information, contact Mallory Casperson, mallory@lacunaloft.org or visit lacunaloft.org
Founded in 2001, Cancer and Careers is a national nonprofit that empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events. The organization reaches more than 440,000 individuals per year online, in print and in person. Its free services include a comprehensive website and library of publications in English and Spanish, legal and insurance information, career coaching, resume review, professional development micro-grants, and national events and workshops for people with cancer and their healthcare providers, coworkers and employers. For more information, email cancerandcareers@cew.org or visit their English website at www.cancerandcareers.org and Spanish website www.cancerandcareers.og/es
The LLS Children’s Initiative is a $100 million multi-year effort to take on children’s cancer through every facet of LLS’s mission: research, patient education, and support and policy and advocacy. The LLS Children’s Initiative includes: more pediatric research grants, a global precision medicine clinical trial, expanded free education and support services for children and families, and driving policies and laws that break down barriers to care. For more information, visit www.lls.org/childrens-initiative.
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The CureSearch mission is to end childhood, adolescent and young adult cancer by driving targeted and innovative research with measurable results in an accelerated time frame. CureSearch drives critical collaborations to accelerate the pace of pediatric drug development. With the unmatched expert leadership of scientific and industry councils, the charity identifies and funds only the most innovative research with the potential to move quickly into the clinic and marketplace, reaching children, adolescents and young adults now. For more information, visit www.CureSearch.org.
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